You or a loved one has been diagnosed with cancer. As you start treatment, you look to your care team to guide you thru this physically and emotionally demanding illness.
To ensure the perfect possible treatment, your relationship together with your healthcare team ought to be an lively partnership. Your doctors will strive to offer you clear and honest details about what is occurring in your body. In return, you have to educate yourself about your treatment options, know what to anticipate, and be open about your needs and treatment experience. This way, your treatment will likely be just best for you.
According to Dr. Eric Winer, doctor-patient partnership is the cornerstone of clinical care and research. Winer is director of the Yale Cancer Center and chief physician of the Smilow Cancer Hospital. He can be president of the American Society of Clinical Oncology (ASCO).
Much of his commitment to patient care stems from his personal experience as a patient each in childhood and as an adult, which is why he selected “Partnership with Patients” because the presidential theme for the 2023 ASCO Conference.
“The topic was chosen very deliberately. I do a lot of things and have done a lot of things in my career. I've taught, I've done research, I've taken care of patients. But everything I do is fundamentally based on patient care and has come from my interest in making patient care as good as possible for everyone,” Winer said.
Your cancer team isn't just your doctor. There are several other healthcare providers. These include nurses, social employees, patient advocates and other medical professionals.
With so many individuals on board, open communication is the perfect approach to ensure everyone seems to be on the identical page. This will allow you to easily coordinate treatment options—from chemotherapy appointments, doctor visits, and insurance inquiries to aftercare.
“I think, I imagine it like this: the medical team is an expert in the medical treatment. The patient and sometimes the patient's family [member] is an expert on the patient. And it is necessary to bring together both the medical judgment and the knowledge, the very comprehensive knowledge of the patient, to make the right decision,” Winer said.
Winer also points out that patients shouldn't worry about “taking up too much time” or “annoying the doctor.” In fact, the other is true. Speaking up about what's bothering you and expressing your concerns, resembling pain, can assist construct a stronger relationship together with your cancer care team.
“You want to have a trusting relationship,” he said.
Studies show that patients who experience compassionate, patient-centered care and “feel like they are part of the team” are inclined to receive higher quality care.
“Patients who [have] “Strong partnerships have better overall outcomes, shorter hospital stays, higher satisfaction with care and generally appear to be more successful,” Winer said.
This is since you usually tend to feel listened to and understood together with your values.
This may include having clarity about your legal rights, your role or the role of your family members in decision-making, and your healthcare interactions.
The trust you construct together with your doctor may allow you to make difficult decisions, resembling participating in clinical trials or other research projects.
A clinical trial is a type of care in a research setting through which doctors test recent tests, treatments, or procedures compared to plain care. These studies are done on a voluntary basis.
This allows researchers to seek out out whether the brand new drug or treatment is healthier or simpler than the prevailing one. For example, the experimental drug might need fewer uncomfortable side effects or just work higher or faster.
Clinical trials are well researched and punctiliously vetted before you may participate in them, but there continues to be a risk.
This is because your doctors may not find a way to predict how well you'll reply to the brand new treatment. And If the trial is randomized, chances are you'll or may not receive the newer treatment as a part of the trial design.
“If [a doctor] “If a patient wants to contemplate participating in clinical trials or other research studies, it's really vital that the patient understands what this research is about, what the clinical trials are about, and that every one of this is feasible through an efficient partnership,” Winer said.
Even if you develop a close relationship with your doctor, Winer says you don't have to be “friends” with them. Instead, focus on being proactive about deciding what works for you and advocating for your specific needs.
“I think what makes a good partner is clear communication, listening, responding and respect,” Winer said.
There are many types of cancer and tumor subtypes. Treatment can be different for each type and change depending on how far the tumor has spread in your body. It may take some time to choose the treatment that fits your lifestyle. To make an informed decision, you should first learn everything you can about it.
For example, if a particular treatment is taking up a lot of time and preventing you from spending time with your children or other loved ones, you may want to consider an alternative. This requires an honest discussion with your doctor. He or she can then help you weigh the risks and benefits of the available options and find the one that is best for you.
Here are some things you can do to build a good relationship with your doctor:
Prepare in your visit. Take a couple of minutes to assemble all of your records, note any recent symptoms or uncomfortable side effects, and note any changes in medications or insurance.
Bring an inventory of questions with you. Doctor's appointments are sometimes short. To profit from them, write down all of your questions in your phone or on paper. Ask a very powerful ones first.
Bring someone near you with you to your appointment. If you're anxious or feel overwhelmed by your cancer treatment, you're welcome to bring someone with you who can represent you. This person may allow you to make decisions if you happen to are unable to accomplish that.
Be honest together with your doctor. Don't hold back from expressing your thoughts or concerns. This includes talking openly about lifestyle habits resembling smoking or drinking alcohol, or uncomfortable side effects of treatment resembling lack of appetite or trouble sleeping. These things may affect the standard or effectiveness of your treatment.
Ask inquiries to properly understand your care plan. Whether it's lab tests, blood draws, or scheduling chemotherapy appointments, be certain you understand each step of your treatment plan. If you don't, ask your doctor or other members of your care team to clarify it to you.
Follow your care plan fastidiously. Most cancer treatments are tailored to your needs. Stick to the plan, but tell your doctor if any a part of it, resembling the medication dose or the suggestion to quit smoking, doesn't be just right for you. Your treatment team may find a way to supply alternative options that work higher for you.